“Nancy, WELCOME to our group! I'm sorry that you have this monster of a disease,but this group is great when we can all get together! I don't think anyone has RSVP'd yes for this month's meeting. I have to do a better job at presenting a program for each meeting, that will get more people out , but I have this disease too, plus MS and haven't been feeling well either! ANYWAY this is a group that will support each other through everything! Welcome!”

“Welcome to our group Joey! I'm sorry to hear that you have this monster of a disease RSD. We would love to see you at one of our meetings, and we are trying to arrange a walk/roll for awarness, by the end of Mid to end of October. Reach out to me if you have any questions, here is my e-mail address. [masked]”

“Hi Danielle,I most likely want ever get to meet you because I live in a small town in eastern N C. I would love a meetup but none around here. Anyone reading this hopefully will be able to inform me of such information and also of a doctor who knows what rsd means in my area. Thanks for all you do. Anna G.”

“Hi Teresa, I also am 19 and have been suffering with RSD since Dec of 2004, ironic huh? well if your daughter ever wants to talk to me she can email me whenever she wants @ [masked] I have rsd on my whole right side both hips and my back, i fortunally have been in remission since november but know all of the struggles that come along with all of this being a teenager myself. I would love to talk to your daughter!! Courtney”